LE RÉPERTOIRE SLA / MND Créé par des familles touchées par la SLA, pour les familles touchées par la SLA

Community-built · Privacy-friendly · Continuously updated · No personal data sold

—

Organisations au total

—

Pays

—

Cliniques et centres médicaux

—

Organisations de soutien

—

États américains

Comment nous maintenons l'utilité de ce répertoire

Nous recensons les cliniques, organisations, centres de recherche et ressources SLA/MND dans le monde entier

Nous examinons les sources publiques, les sites officiels et les recherches publiées

Nous classons les fiches par catégorie, zone géographique et services proposés

La communauté peut signaler des corrections ou des organisations manquantes

Les fiches sont mises à jour dès que de nouvelles informations sont disponibles

Lire notre méthodologie complète →

Ajouts récents

Les organisations les plus récentes du répertoire — il en manque une ? Ajouter une organisation →

Explorer le répertoire

Des outils et des ressources pour vous orienter dans la communauté SLA/MND.

Outil de comparaison

Sélectionnez des organisations dans la liste, puis comparez-les côte à côte.

Calendrier communautaire

Découvrez les prochains événements, collectes de fonds et webinaires SLA.

Actualités SLA

Avancées de la recherche, traitements et nouvelles de la communauté.

Médicaments en développement

Suivez chaque médicament contre la SLA en développement, de la phase 1 à l'approbation de la FDA.

Soutenir et faire un don

Nous sommes financés à 100 % par les dons. Chaque euro soutient la communauté SLA.

Subscribe to ALS Compass

Your weekly guide to ALS resources, research, and community.

Organizations in the directory

National Institute of Neurology & Neurosurgery, Havana - LAENALS Affiliate Site — ALS Research and Data Sources, Havana, Cuba
Universidad de Chile Neurology Department (South Division) - LAENALS Affiliate Site — ALS Research and Data Sources, Santiago, Chile
Serbian Association of ALS Patients (SANALS) — Non-Profit / Advocacy, Belgrade, Serbia
ALS Egypt (Egyptian ALS Support) — Non-Profit / Advocacy, Cairo, Egypt
ALS Info — Information for Patients & Families About Living with ALS, Massachusetts, United States
ALS/MND Association Bosnia and Herzegovina — Advocacy, Sarajevo, Bosnia and Herzegovina
ALS/MND Association Luxembourg — Advocacy, Luxembourg City, Luxembourg
ALS/MND Kenya — Advocacy, Nairobi, Kenya
ALS/MND Romania — Non-Profit / Advocacy, Bucharest, Romania
Bulgarian ALS/MND Association — Non-Profit / Advocacy, Sofia, Bulgaria
Chilean ALS Foundation (Fundación Chilena de ELA) — Non-Profit / Advocacy, Santiago, Chile
Neurological Association of South Africa - MND — Non-Profit / Advocacy, Cape Town, South Africa
Nigerian MND Support Foundation — Non-Profit / Advocacy, Lagos, Nigeria
Amyotrophic Lateral Sclerosis Registry in Thailand — Research, Bangkok, Thailand
Dětská mozková obrna ČR (Czech Association for ALS Patients) — Non-Profit / Advocacy, Prague, Czech Republic
Magyar ALS Egyesület / Magyar Izomsorvadásos Betegek Egyesülete — Non-Profit / Advocacy, Budapest, Hungary
ALS online genetics database (ALSoD) — ALS Research and Data Sources, England, United Kingdom
ALSGene.org — ALS Research and Data Sources, England, United Kingdom
SLA Foundation (Hungary) — Non-Profit / Advocacy, Budapest, Hungary
ALS/MND Association Croatia — Advocacy, Zagreb, Croatia
MDA Greece (Muscular Dystrophy Association Greece) — Advocacy, Athens, Greece
Finding Freedom — ALS Awareness by Patients and Caregivers, United States, United States
Team G Force — ALS Awareness by Patients and Caregivers, United States, United States
The DREAM Project — Innovative Problem Solvers, United States, United States
Contagious for a Cure — ALS Awareness by Patients and Caregivers, United States, United States
Initiative SMA — Berlin, Germany
NeufStrong — ALS Awareness by Patients and Caregivers, United States, United States
American University of Beirut Medical Center (AUBMC); American University of Beirut (AUB) Faculty of Medicine — ALS Center, Beirut, Lebanon
Tehran University of Medical Sciences (TUMS); Iran University of Medical Sciences (IUMS); Shahid Beheshti University of Medical Sciences (SBMU); Mashhad University of Medical Sciences; Shiraz University of Medical Sciences — ALS Center, Tehran, Iran
University of Nairobi College of Health Sciences + Kenyatta National Hospital (K — ALS Center, Nairobi, Kenya
ALS From Both Sides — Information for Patients & Families About Living with ALS, Colorado, United States
PRO-ACT — ALS Research and Data Sources, Massachusetts, United States
The ALS Forum — Advocacy, New York, United States
ALS Pathways — Information for Patients & Families About Living with ALS, California, United States
Prize4Life — Innovative Problem Solvers, California, United States
Mohammed V University Faculty of Medicine — Neurology Department — ALS Center, Rabat, Morocco
University of Tunis El Manar Faculty of Medicine — Neurology Department — ALS Center, Tunis, Tunisia
Czech ALS Association — Non-Profit / Advocacy, Prague, Czech Republic
Polish ALS Association (Stowarzyszenie Chorych na SLA) — Non-Profit / Advocacy, Warsaw, Poland
Cairo University Faculty of Medicine (Kasr Al-Ainy); Ain Shams University Faculty of Medicine; Alexandria University Faculty of Medicine; American University in Cairo — ALS Center, Cairo, Egypt
University of Ibadan College of Medicine; University College Hospital Ibadan (UCH); University of Lagos (UNILAG); College of Medicine Lagos; Obafemi Awolowo University Ile-Ife — ALS Center, Lagos, Nigeria
Asociația Română împotriva Sclerozei Laterale Amiotrofice (ARSLA) — Non-Profit / Advocacy, Bucharest, Romania
Catalyst NeuroMedical ALS Multidisciplinary Clinic — Affiliated Clinic, California, United States
Forbes Norris ALS Research and Treatment Center – Satellite Clinic Sacramento — Affiliated Clinic, California, United States
Gary E. Shealy Memorial ALS Clinic at Eastern Tennessee State University — Affiliated Clinic, Tennessee, United States
Ginsburg Neurology — Affiliated Clinic, Nevada, United States
Harbor-UCLA ALS Clinic — Affiliated Clinic, California, United States
Harry J. Hoenselaar ALS Clinic — Certified Treatment Center of Excellence, Michigan, United States
Jim "Catfish" Hunter ALS Clinic — Recognized Treatment Center, North Carolina, United States
Kadlec ALS Clinic — Affiliated Clinic, Washington, United States
Kaiser Denver ALS Clinic — Affiliated Clinic, Colorado, United States
Kaiser San Diego ALS Clinic — Affiliated Clinic, California, United States
Las Vegas Clinic – ALS Clinic — Affiliated Clinic, Nevada, United States
Le Bois Neurology — Affiliated Clinic, Idaho, United States
Macon ALS Clinic — Affiliated Clinic, Georgia, United States
Marshall Health ALS Clinic — Affiliated Clinic, West Virginia, United States
Mid Coast Hospital ALS Clinic — Affiliated Clinic, Maine, United States
Neurology LLPC — Affiliated Clinic, Oklahoma, United States
Phil Smith Neuroscience Institute ALS Clinic & Research Center at Holy Cross Health — Certified Treatment Center of Excellence, Florida, United States
Richard R. Dart ALS Clinic — Certified Treatment Center of Excellence, Virginia, United States
Sanford Neurology Clinic — Affiliated Clinic, South Dakota, United States
St. Alphonsus Rehab Services — Affiliated Clinic, Idaho, United States
St. Charles Rehabilitation Center — Affiliated Clinic, Oregon, United States
The ALS Care Clinic at Crestwood Medical Center — Certified Treatment Center of Excellence, Alabama, United States
The ALS Clinic at The University of North Carolina at Chapel Hill — Affiliated Clinic, North Carolina, United States
The ALS Clinic of the MidSouth — Affiliated Clinic, Tennessee, United States
The John J. Kelly ALS Clinic — Certified Treatment Center of Excellence, District of Columbia, United States
The Louise Wilcox ALS Clinic — Recognized Treatment Center, Rhode Island, United States
The Neuromuscular Center at Hospital for Special Care — Certified Treatment Center of Excellence, Connecticut, United States
UW Health University Hospital ALS Clinic — Affiliated Clinic, Wisconsin, United States
UW Neurology Clinic — Affiliated Clinic, Washington, United States
VM Franciscan ALS Clinic at St. Joseph Medical Center — Affiliated Clinic, Washington, United States
Wichita ALS Clinic in Partnership with Neurology Consultants of Kansas — Affiliated Clinic, Kansas, United States
ALS Vietnam — Non-Profit / Advocacy, Ho Chi Minh City, Vietnam
Centro de Referência para Doenças Neuromusculares da SES-DF - Brasília — ALS Center, Distrito Federal, Brazil
Escola Bahiana de Medicina - Ambulatório Docente Assistencial — ALS Center, Bahia, Brazil
Hospital das Clínicas de São Paulo - Instituto Central — ALS Center, São Paulo, Brazil
Hospital Universitário Lauro Wanderley - UFPB — ALS Center, Paraíba, Brazil
Hospital Universitário Onofre Lopes (UFRN) — ALS Center, Rio Grande do Norte, Brazil
Irmandade da Santa Casa de Misericórdia de São Paulo - Setor de Doenças Neuromusculares — ALS Center, São Paulo, Brazil
Setor de Investigação em Doenças Neuromusculares da UNIFESP — ALS Center, São Paulo, Brazil
Universidade Federal do Ceará / Hospital Universitário Walter Cantídio — ALS Center, Ceará, Brazil
Stichting Patiënten voor patiënten — ALS In-Person Support Groups, Noord-Holland, Netherlands
Hospital Clínico Universidad de Chile Neurology Department (North Division) - LAENALS Affiliate Site — ALS Research and Data Sources, Santiago, Chile
Instituto de Neurología, Hospital de Clínicas Montevideo - LAENALS Affiliate Site — ALS Research and Data Sources, Montevideo, Uruguay
Hong Kong MND Support Group — Non-Profit / Advocacy, Hong Kong, Hong Kong
Northstar ALS — Advocacy, Minnesota, United States
EU Joint Programme – Neurodegenerative Disease Research (JPND) — International ALS Resources, Bonn, Germany
Project MINE — ALS Research and Data Sources, Utrecht, Netherlands
Treeway — Other Interested Companies (AnswerALS), Utrecht, Netherlands
U.S. Department of Defense — ALS Research and Data Sources, Virginia, United States
World Federation of Neurology-ALS — ALS Research and Data Sources, England, United Kingdom
Team Drea — ALS Awareness by Patients and Caregivers, Massachusetts, United States
İstanbul Üniversitesi (Istanbul University); Hacettepe Üniversitesi (Hacettepe University, Ankara); Başkent Üniversitesi (Başkent University, Istanbul Practice and Research Center); Ege Üniversitesi (Ege University, Izmir); Atatürk Üniversitesi (Erzurum) — ALS Center, Istanbul, Turkey
HUS Helsinki University Hospital — ALS Center, Uusimaa, Finland
Linköping University Hospital — ALS Center, Östergötland Region, Sweden
Örebro University Hospital — ALS Center, Örebro Region, Sweden
Oslo University Hospital (OUH) ALS Clinic — ALS Center, Oslo + Helse Sør-Øst, Norway
Oulu University Hospital (OYS) — ALS Center, Northern Finland — Pohjois-Pohjanmaa, Finland
Sahlgrenska University Hospital — ALS Center, Västra Götaland region, Sweden
Skåne University Hospital (SUS) — ALS Center, Skåne Region, Sweden
Uppsala University Hospital — ALS Center, Uppsala Region, Sweden
Sheba Medical Center (Chaim Sheba); Tel Aviv University Sackler Faculty of Medicine affiliation — ALS Center, Tel HaShomer, Israel
Tokushima University — ALS Center, Tokushima, Tokushima Prefecture, Japan
NIH National Institute of Neurological Disorders and Stroke (NINDS) - ALS — Government, Maryland, United States
National Taiwan University Hospital (NTUH) - Department of Neurology — ALS Center, Taipei, Taiwan
Umeå University Hospital / University Hospital of Northern Sweden (NUS) — ALS Center, Northern Sweden region, Sweden
ALS Indonesia — Non-Profit / Advocacy, Jakarta, Indonesia
MND Association Iceland — Advocacy, Reykjavik, Iceland
Canadian ALS Research Network (CALS) — Research, Quebec, Canada
Deutsche ALS-Hilfe (German ALS Aid) — Advocacy, Berlin, Germany
Deutsche Gesellschaft für Muskelkranke (DGM) — Advocacy, Baden-Württemberg, Germany
MND Association Singapore — Advocacy, Singapore, Singapore
University of Ulm ALS Research — Research, Baden-Württemberg, Germany
ALS Forums — ALS Online Support Groups and Patient Forums, United States, United States
Also Us (Arts Program) — Resources for Children of ALS Community, United States, United States
German Society for Muscular Patients — ALS Awareness, Berlin, Germany
MND-NET — Deutsches Netzwerk für Motoneuronerkrankungen (German Network for Motor Neuron Diseases) — Medical Centers and Consortia, Baden-Württemberg, Germany
Universitätsklinikum Bonn - ALS-Ambulanz — ALS Center, Nordrhein-Westfalen, Germany
SLA Fondation (ALS Foundation France) — Advocacy, Île-de-France, France
SpeakUnique (Personalized Voice) — Pharma / Drug Developer, Scotland, United Kingdom
ALS Rap — Research, England, United Kingdom
My Name's Doddie Foundation — Family Foundation, Scotland, United Kingdom
ACELA - Asociación Colombiana de Esclerosis Lateral Amiotrófica — Advocacy, Bogotá, Colombia
ALS Russia (alsportal.ru) — Advocacy, Moscow, Russia
Apoyo Integral Gila AC (Gila A.C.) — Advocacy, Mexico City, Mexico
Asociación ELA Perú — Advocacy, Lima, Peru
Asociación Unidos para Apoyarte (AUPA) — Advocacy, Panama City, Panama
Philippine Neurological Association - ALS Group — Non-Profit / Advocacy, Manila, Philippines
Riga East University Hospital - ALS Centre — Medical Center, Riga, Latvia
Thai Neurology Society - MND Division — Non-Profit / Advocacy, Bangkok, Thailand
MND24 — ALS Awareness, Dubai, United Arab Emirates
University of Alberta Faculty of Medicine & Dentistry; Alberta Health Services — ALS Center, Alberta, Canada
ALS Registry — ALS Research and Data Sources, Georgia, United States
Your ALS Guide — Information for Patients & Families About Living with ALS, Michigan, United States
ALSUntangled — Funding and Conducting ALS Research, Arizona, United States
Every 90 Minutes — Adaptive Technology, New Jersey, United States
Familial ALS Registry — ALS Research and Data Sources, Massachusetts, United States
Speed4Sarah — ALS Awareness by Patients and Caregivers, Massachusetts, United States
Tackle ALS — Funding and Conducting ALS Research, New York, United States
ALL ALS (NIH Research Program) — Research, Maryland, United States
ALS Emergency Treatment Fund — Advocacy, California, United States
ALS Research Collaborative (ARC) — Research, Massachusetts, United States
ALS Signal (Clinical Trial Finder by I AM ALS) — Non-Profit / Advocacy, District of Columbia, United States
ALSWiki.org — Advocacy, Ontario, Canada
Gleason Initiative Foundation — Non-Profit / Advocacy, Louisiana, United States
Muscular Dystrophy Association (MDA) - ALS Division — Advocacy, Illinois, United States
Muscular Dystrophy Association Venture Philanthropy — ALS Research and Data Sources, Illinois, United States
National Amyotrophic Lateral Sclerosis Registry — ALS Research and Data Sources, Massachusetts, United States
Prize4Life / ALS Research Forum — Research, Massachusetts, United States
Team Gleason Voice Preservation Program — Non-Profit / Advocacy, Louisiana, United States
The ALS Residence Initiative — Advocacy, New York, United States
A.L.S FAMILY — Family Foundation, Massachusetts, United States
ALS Biorepository - Johns Hopkins — Research, Maryland, United States
Clínica Alemana de Santiago - Universidad del Desarrollo (Department of Neurology and Psychiatry) — ALS Center, Santiago, Chile
Clínica Dávila - Department of Neurology — ALS Center, Santiago, Chile
Give Big Pittsburgh — Funding and Conducting ALS Research, Pennsylvania, United States
Roche — Pharma, Basel-Stadt, Switzerland
Team Cure ALS — ALS Awareness, Oregon, United States
The Blazeman Foundation for ALS — Family Foundation, Massachusetts, United States
University Hospital Bonn - ALS Outpatient Clinic — ALS Center, North Rhine-Westphalia, Germany
Hospital Neurológico de Colombia (Medellín) + affiliated Colombian academic hospitals — ALS Center, Medellín, Antioquia, Colombia
Multiple Mexico City academic hospitals participating in NEALS international network — ALS Center, Mexico City, Mexico
Universidade de São Paulo (USP) — Ribeirão Preto Campus; Faculdade de Medicina de Ribeirão Preto — ALS Center, Ribeirão Preto, SP, Brazil
The ALS Association of Republic of Srpska, Bosnia and Herzegovina — Sarajevo, Bosnia and Herzegovina
Aga Khan University Hospital – Neurology (ALS/MND care) — Clinic, Karachi, Pakistan
Taichung Veterans General Hospital - Division of Neuromuscular Disease — ALS Center, Taichung, Taiwan
Taipei Veterans General Hospital - Neurological Institute — ALS Center, Taipei, Taiwan
Universidad de Antioquia - Grupo de Neurociencias de Antioquia (GNA), Facultad de Medicina — Research and Education Centers, Medellín, Colombia
Universidad de la Costa - Department of Neurosciences — Research and Education Centers, Atlántico, Colombia
University of Washington — Medical Centers and Consortia, Washington, United States
ALS Clinic AT DC Veteran Hospital — Affiliated Clinic, District of Columbia, United States
Louis Stokes Cleveland Department of Veterans Affairs Medical Center — Certified Treatment Center of Excellence, Ohio, United States
Nova Southeastern University - NSU Health ALS Clinic — Affiliated Clinic, Florida, United States
Southeast Louisiana Veterans Health Care System ALS Clinic — Affiliated Clinic, Louisiana, United States
Veteran’s Administration - San Francisco — Recognized Treatment Center, California, United States
Corporación ELA Chile — Non-Profit / Advocacy, Santiago, Chile
FYADENMAC (Familiares y Amigos de Enfermos de la Neurona Motora AC) — Advocacy, Mexico City, Mexico
ALS National Registry — Health Data Registries, Georgia, United States
Emory — Medical Centers and Consortia, Georgia, United States
ALS News Today — ALS Awareness, Florida, United States
Clinical Trials.gov — ALS Research and Data Sources, Maryland, United States
Target ALS — Funding and Conducting ALS Research, Massachusetts, United States
CRER - Centro Estadual de Reabilitação e Readaptação Dr. Henrique Santillo — ALS Center, Goiás, Brazil
Invitae — Health Data Networks and Initiatives, California, United States
NIH Therapeutics for Rare and Neglected Diseases (TRND) Program — ALS Research and Data Sources, Maryland, United States
ThompsonTough — Family Foundation, Utah, United States
Hospital Universitário Gaffrée e Guinle (UNIRIO); Universidade Federal Fluminense (UFF); Instituto de Neurologia Deolindo Couto (IDC); Hospital Bonsucesso; Hospital Federal da Lagoa — Research, Rio de Janeiro, Brazil
Mayo Clinic — Medical Centers and Consortia, Minnesota, United States
National ALS Registry — ALS Research and Data Sources, Georgia, United States
The University of Hong Kong Li Ka Shing Faculty of Medicine — ALS Center, Hong Kong, Hong Kong
Hanyang University College of Medicine — ALS Center, Seoul, South Korea
Peking Union Medical College Hospital (PUMCH) — ALS Center, Beijing, China
University of Sydney Brain and Mind Centre — ALS Center, New South Wales, Australia
University of Lisbon ALS Multidisciplinary Clinic — Innovative Problem Solvers, Lisbon, Portugal
Univ Mass — Medical Centers and Consortia, Massachusetts, United States
The Royal Melbourne Hospital — ALS Center, Victoria, Australia
Jordan University Hospital — Neurology Department — ALS Center, Amman, Jordan
UCSF — Medical Centers and Consortia, California, United States
ALS Liga Hrvatska (Croatian ALS League) — Non-Profit / Advocacy, Zagreb, Croatia
MND Association of India — Non-Profit / Advocacy, Mumbai, India
SCRP - Sharing Clinical Reports Project — Health Data Networks and Initiatives, St. Gallen, Switzerland
APELA (Associação Portuguesa de Esclerose Lateral Amiotrófica) — Non-Profit / Advocacy, Lisbon, Portugal
Neurocenter Finland (Neurokeskus) — Medical Centers and Consortia, Uusimaa, Finland
The Warren Alpert Medical School of Brown University — ALS Center, Rhode Island, United States
University of Washington School of Medicine — ALS Center, Washington, United States
Weill Cornell Medicine — ALS Center, New York, United States
Revalidatie Friesland — ALS Center, Friesland, Netherlands
Knopp — Pharma, Pennsylvania, United States
MetroHealth ALS Clinic — Affiliated Clinic, Ohio, United States
Austrian ALS Association — Non-Profit / Advocacy, Vienna, Austria
China ALS Association — Advocacy, Beijing, China
Conemaugh Health System ALS Clinic — Affiliated Clinic, Pennsylvania, United States
Doctors' Hospital at Renaissance — Affiliated Clinic, Texas, United States
MDA/ALS Clinic at University of Mississippi Medical Center — Affiliated Clinic, Mississippi, United States
Northshore University Health System — Affiliated Clinic, Illinois, United States
Novant Neurology ALS Clinic — Affiliated Clinic, North Carolina, United States
St. Louis University Health Science Center — Certified Treatment Center of Excellence, Missouri, United States
The Johns Hopkins Center for ALS Specialty Care — Affiliated Clinic, Maryland, United States
University of Rochester Medical Center (URMC) — ALS Center, New York, United States
ALS Untangled — Research, Arizona, United States
Conslancio Onlus Italy — ALS Awareness, Lombardy, Italy
Fondation Thierry Latran — International ALS Resources, Île-de-France, France
Fundacion Español ALS — ALS Awareness, Madrid, Spain
Irish Motor Neuron Disease Association — ALS Awareness, Dublin, Ireland
Stiftelsen ALS Norge — Family Foundation, Akershus, Norway
TUDCA ALS — ALS Center, Lombardy, Italy
Wu Medical Center — Medical Center, Beijing, China
ALS Worldwide — Non-Profit / Advocacy, California, United States
Centro Hispano Caribeño de ALS para Investigaciones Clínicas (CHALS-CCT) — ALS Research and Data Sources, San Juan, Puerto Rico
EFPIA (trade org) — Pharma, Brussels, Belgium
ALS Norway (ALS Norsk Støttegruppe) — Advocacy, Oslo, Norway
Acapela Group (My-Own-Voice) — Pharma / Drug Developer, Hainaut, Belgium
ADELA - Asociación Española de ELA — Advocacy, Madrid, Spain
AISLA - Associazione Italiana Sclerosi Laterale Amiotrofica — Advocacy, Lombardy, Italy
ALS Care and Support Foundation India — Advocacy, Delhi, India
ALS Stichting (ALS Foundation Netherlands) — Advocacy, Noord-Holland, Netherlands
Asociación ELA/EMN — Advocacy, Madrid, Spain
Fondazione Italiana di ricerca per la SLA (AriSLA) — Research, Lombardy, Italy
Fundela - Fundación Española para el Fomento de la Investigación de la ELA — Research, Madrid, Spain
IsrALS - Israel ALS Research Association — Research, Tel Aviv, Israel
Muskelsvindfonden (Danish Muscular Dystrophy Foundation) — Advocacy, Capital Region, Denmark
Sakura-kai ALS Support — Advocacy, Tokyo, Japan
Weizmann Institute of Science - ALS Research — Research, Central, Israel
Centro Clinico NeMO Ancona — ALS Center, Marche, Italy
Centro Clinico NeMO Arenzano (Genoa) — ALS Center, Liguria, Italy
Centro Clinico NeMO Bologna — ALS Center, Emilia-Romagna, Italy
Centro Clinico NeMO Brescia — ALS Center, Lombardy, Italy
Centro Clinico NeMO Milano — ALS Center, Lombardy, Italy
Centro Clinico NeMO Napoli — ALS Center, Campania, Italy