Score by Dimension
Score breakdown
Services Breadth
3/5Number of service categories this organization offers.
- ✓1 service category listed
Research Activity
PubMed publications + ClinicalTrials.gov active trials linked to this organization.
- —0 PubMed publications
- —0 active clinical trials
Accessibility
5/5How easy it is for patients and families to reach this organization.
- ✓Has website
- ✓Has phone number
- ✓Has email
- —Has street address
- ✓Has map coordinates
Patient Support
Breadth of direct support offered to patients and families.
- —In-person support groups
- —Online support groups
- —Caregiver resources in services
- —Funds or provides home care
- —Children's resources
Data Completeness
4/5Percentage of profile fields with information.
- ✓Name
- ✓Type
- ✓Country
- ✓State / region
- —Address
- ✓Phone
- ✓Website
- ✓Mission
Network Connectivity
Connections to research consortia and ALS networks.
- —Part of a consortia
- —International reach
- —Publishes research
- —Maintains an ALS database
- —Mentions a known network (NEALS, ENCALS, TRICALS, etc.)
Community Rating
0/5No community reviews yet — this dimension is excluded from the overall score.
- —No reviews yet
Mission
Western Sweden regional ALS clinic. Institution: Sahlgrenska Universitetssjukhuset. Swedish MND Quality Registry contributor — all MND patients entered at diagnosis and followed every 12 weeks Contributes to Swedish national ALS trial recruitment pipeline through the Karolinska Treatment Center collaboration Participates in BNDMR-equivalent national neurology registries including Swedish Neuro-registry (Neuroreg) Serves Västra Götaland region — ~1.7 million people
Community Reviews
Be the first to share your experience.
Is this your organization?
Claim this listing to verify your information and unlock premium features.
Subscribe to ALS Compass
Your weekly guide to ALS resources, research, and community.