Spinal Muscular Atrophy UK
Non-ProfitUnit 9, Shottery Brook Office Park,, Timothys Bridge Road, STRATFORD-UPON-AVON, Warwickshire CV37 9NR, GB, Warwickshire, United Kingdom
Score by Dimension
Score breakdown
Services Breadth
3/5Number of service categories this organization offers.
- ✓1 service category listed
Advocacy Reach
2/5How broadly this organization advocates and informs the ALS community.
- —Raises ALS awareness
- —Online information source
- —Publishes research / reports
- ✓International reach
- —Engages in policy / advocacy
Accessibility
5/5How easy it is for patients and families to reach this organization.
- ✓Has website
- ✓Has phone number
- ✓Has email
- ✓Has street address
- ✓Has map coordinates
Patient Support
Breadth of direct support offered to patients and families.
- —In-person support groups
- —Online support groups
- —Caregiver resources in services
- —Funds or provides home care
- —Children's resources
Data Completeness
5/5Percentage of profile fields with information.
- ✓Name
- ✓Type
- ✓Country
- ✓State / region
- ✓Address
- ✓Phone
- ✓Website
- ✓Mission
Network Connectivity
2/5Connections to research consortia and ALS networks.
- —Part of a consortia
- ✓International reach
- —Publishes research
- —Maintains an ALS database
- —Mentions a known network (NEALS, ENCALS, TRICALS, etc.)
Contact
Mission
We will work tirelessly to raise awareness of SMA, to be a leading advocate for individuals and families and to ensure timely access to diagnosis, effective treatment and best management for all affected by SMA.
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