Kantonsspital St. Gallen (HOCH Health Ostschweiz); academic affiliation Universität Basel
ClinicKanton St. Gallen, Switzerland, Kanton St. Gallen, Switzerland
Score by Dimension
Score breakdown
Services Breadth
3/5Number of service categories this organization offers.
- ✓1 service category listed
Research Activity
PubMed publications + ClinicalTrials.gov active trials linked to this organization.
- —0 PubMed publications
- —0 active clinical trials
Accessibility
5/5How easy it is for patients and families to reach this organization.
- ✓Has website
- ✓Has phone number
- ✓Has email
- ✓Has street address
- ✓Has map coordinates
Patient Support
Breadth of direct support offered to patients and families.
- —In-person support groups
- —Online support groups
- —Caregiver resources in services
- —Funds or provides home care
- —Children's resources
Data Completeness
5/5Percentage of profile fields with information.
- ✓Name
- ✓Type
- ✓Country
- ✓State / region
- ✓Address
- ✓Phone
- ✓Website
- ✓Mission
Network Connectivity
2/5Connections to research consortia and ALS networks.
- —Part of a consortia
- —International reach
- —Publishes research
- —Maintains an ALS database
- ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)
Community Rating
0/5No community reviews yet — this dimension is excluded from the overall score.
- —No reviews yet
Contact
Mission
Swiss flagship ALS research + clinical center — major European ALS trial site; MUNIX biomarker development. Lead: **Prof. Dr. Markus Weber**, MD — Professor of Neurology, **University of Basel**; Diploma in Clinical Neurology from University of London Queen Square; MD University of Bonn; neuromuscular fellowship at **University of British Columbia in Vancouver** (1997-2000); **ENCALS executive committee member**; **ENMC research committee member**; former co-chair of the **European Academy of Neurology scientific panel on ALS and FTD**; **PRECISION-ALS named expert**. Patient volume: ~250 ALS patients from all over Switzerland in current follow-up (TRICALS figure); 200 patients per earlier ENCALS listing; the major Swiss ALS referral center Visit frequency: Every 3 months (standard multidisciplinary review protocol) Signature research contribution: Development of the MUNIX (Motor Unit Number Index) — a widely adopted non-invasive biomarker for tracking motor unit loss in ALS, used as an outcome measure in international ALS clinical trials Research areas: Outcome measures; clinical neurophysiology; trial design; cannabinoid research; quality-of-life research; genetic research (including collaborative DNA banking)
Community Reviews
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