Kantonsspital St. Gallen (HOCH Health Ostschweiz); academic affiliation Universität Basel

Clinic
Multi-Condition · Serves ALS/MND

Kanton St. Gallen, Switzerland, Kanton St. Gallen, Switzerland

Overall Score
3.0 / 5.0
5 of 7 dimensions scored · 2 N/A
How is this score calculated?

Score by Dimension

Services Breadth
3/5
Research Activity
…
Accessibility
5/5
Patient Support
N/A
Data Completeness
5/5
Network Connectivity
2/5
Community Rating (0 reviews)
0/5
5 of 7 dimensions scored · 2 marked N/A (excluded from the average).
Auto-imported

Score breakdown

Services Breadth

3/5

Number of service categories this organization offers.

  • ✓1 service category listed

Research Activity

PubMed publications + ClinicalTrials.gov active trials linked to this organization.

  • —0 PubMed publications
  • —0 active clinical trials

Accessibility

5/5

How easy it is for patients and families to reach this organization.

  • ✓Has website
  • ✓Has phone number
  • ✓Has email
  • ✓Has street address
  • ✓Has map coordinates

Patient Support

Breadth of direct support offered to patients and families.

  • —In-person support groups
  • —Online support groups
  • —Caregiver resources in services
  • —Funds or provides home care
  • —Children's resources

Data Completeness

5/5

Percentage of profile fields with information.

  • ✓Name
  • ✓Type
  • ✓Country
  • ✓State / region
  • ✓Address
  • ✓Phone
  • ✓Email
  • ✓Website
  • ✓Mission

Network Connectivity

2/5

Connections to research consortia and ALS networks.

  • —Part of a consortia
  • —International reach
  • —Publishes research
  • —Maintains an ALS database
  • ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Community Rating

0/5

No community reviews yet — this dimension is excluded from the overall score.

  • —No reviews yet

Mission

Swiss flagship ALS research + clinical center — major European ALS trial site; MUNIX biomarker development. Lead: **Prof. Dr. Markus Weber**, MD — Professor of Neurology, **University of Basel**; Diploma in Clinical Neurology from University of London Queen Square; MD University of Bonn; neuromuscular fellowship at **University of British Columbia in Vancouver** (1997-2000); **ENCALS executive committee member**; **ENMC research committee member**; former co-chair of the **European Academy of Neurology scientific panel on ALS and FTD**; **PRECISION-ALS named expert**. Patient volume: ~250 ALS patients from all over Switzerland in current follow-up (TRICALS figure); 200 patients per earlier ENCALS listing; the major Swiss ALS referral center Visit frequency: Every 3 months (standard multidisciplinary review protocol) Signature research contribution: Development of the MUNIX (Motor Unit Number Index) — a widely adopted non-invasive biomarker for tracking motor unit loss in ALS, used as an outcome measure in international ALS clinical trials Research areas: Outcome measures; clinical neurophysiology; trial design; cannabinoid research; quality-of-life research; genetic research (including collaborative DNA banking)

Services
ALS Center

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