Bispebjerg University Hospital - MND Clinic (Department of Neurology)

Clinic
ALS/MND Dedicated

MND Clinic: Nielsine Nielsens Vej 7, 3rd floor, 2400 København NV — Hospital main: Bispebjerg Bakke 23, 2400 København NV, Denmark, Hovedstaden, Denmark

Overall Score
3.0 / 5.0
5 of 7 dimensions scored · 2 N/A
How is this score calculated?

Score by Dimension

Services Breadth
3/5
Research Activity
…
Accessibility
5/5
Patient Support
N/A
Data Completeness
5/5
Network Connectivity
2/5
Community Rating (0 reviews)
0/5
5 of 7 dimensions scored · 2 marked N/A (excluded from the average).
Auto-imported

Score breakdown

Services Breadth

3/5

Number of service categories this organization offers.

  • ✓1 service category listed

Research Activity

PubMed publications + ClinicalTrials.gov active trials linked to this organization.

  • —0 PubMed publications
  • —0 active clinical trials

Accessibility

5/5

How easy it is for patients and families to reach this organization.

  • ✓Has website
  • ✓Has phone number
  • ✓Has email
  • ✓Has street address
  • ✓Has map coordinates

Patient Support

Breadth of direct support offered to patients and families.

  • —In-person support groups
  • —Online support groups
  • —Caregiver resources in services
  • —Funds or provides home care
  • —Children's resources

Data Completeness

5/5

Percentage of profile fields with information.

  • ✓Name
  • ✓Type
  • ✓Country
  • ✓State / region
  • ✓Address
  • ✓Phone
  • ✓Email
  • ✓Website
  • ✓Mission

Network Connectivity

2/5

Connections to research consortia and ALS networks.

  • —Part of a consortia
  • —International reach
  • —Publishes research
  • —Maintains an ALS database
  • ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Community Rating

0/5

No community reviews yet — this dimension is excluded from the overall score.

  • —No reviews yet

Contact

MND Clinic: Nielsine Nielsens Vej 7, 3rd floor, 2400 København NV — Hospital main: Bispebjerg Bakke 23, 2400 København NV, Denmark

Mission

TRICALS-affiliated multidisciplinary MND clinic serving Denmark's Capital Region; team running since ~1995, consolidated care for all capital region MND patients since May 2017. Current caseload: 140 MND patients. Team: 4 neurologists, 1 neuropsychologist, 1 logopedic/speech-language pathologist, 3 nurses, 1 physiotherapist, 1 occupational therapist, 1 clinical dietician, 1 social counsellor. Team member Dr. Kirsten Svenstrup has served since 2014. All patients routinely offered genetic testing. Dedicated clinical trial unit active in reALiSe (ARGX-119) and Biogen ALS investigational drug trials. Maintains biobank with EDTA blood, CSF, and brain tissue (reconstructed since 2018). — ALS Clinic, Multidisciplinary Care (9-discipline team), Clinical Trials (reALiSe, Biogen), Routine Genetic Testing, Biobank (blood/CSF/brain), Speech-Language Pathology, Palliative Care Coordination, TRICALS Member

Services
ALS Center

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