Samodzielny Publiczny Centralny Szpital Kliniczny (SPCSK) w Warszawie — Medical University of Warsaw (Warszawski Uniwersytet Medyczny, WUM); Neurodegenerative Diseases Research Group

Number of service categories this organization offers.

• ✓1 service category listed

PubMed publications + ClinicalTrials.gov active trials linked to this organization.

• —0 PubMed publications
• —0 active clinical trials

How easy it is for patients and families to reach this organization.

• ✓Has website
• ✓Has phone number
• ✓Has email
• ✓Has street address
• ✓Has map coordinates

Breadth of direct support offered to patients and families.

• —In-person support groups
• —Online support groups
• —Caregiver resources in services
• —Funds or provides home care
• —Children's resources

Percentage of profile fields with information.

• ✓Name
• ✓Type
• ✓Country
• ✓State / region
• ✓Address
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• ✓Email
• ✓Website
• ✓Mission

Connections to research consortia and ALS networks.

• —Part of a consortia
• —International reach
• —Publishes research
• —Maintains an ALS database
• ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

No community reviews yet — this dimension is excluded from the overall score.

• —No reviews yet

Contact

Mission

Poland's national flagship ALS research + clinical center; ENCALS-registered; ERN EURO-NMD-registered; BRAINTEASER partner. Patient volume: 3,000+ patients hospitalized in the Department of Neurology each year (including ALS) Polish referential center for diagnosis and treatment of neuromuscular diseases (per ENCALS) Primary Warsaw neurology center + national referral center for rare neuromuscular diseases in Poland Polish SOD1 cohort study: 915 consecutive prospectively tested Polish ALS patients — identified 15 SOD1 mutations in 21.1% familial and 2.3% sporadic cases (Żekanowski/Kuźma-Kozakiewicz 2022, with Umeå + Pomeranian Medical University collaboration)