Semmelweis Egyetem (Semmelweis University); Genomikai Medicina és Ritka Betegségek Intézete (Institute of Genomic Medicine and Rare Disorders); HUN-REN Multiomics Neurodegeneration Research Group

Number of service categories this organization offers.

• ✓1 service category listed

PubMed publications + ClinicalTrials.gov active trials linked to this organization.

• —0 PubMed publications
• —0 active clinical trials

How easy it is for patients and families to reach this organization.

• ✓Has website
• ✓Has phone number
• ✓Has email
• ✓Has street address
• ✓Has map coordinates

Breadth of direct support offered to patients and families.

• —In-person support groups
• —Online support groups
• —Caregiver resources in services
• —Funds or provides home care
• —Children's resources

Percentage of profile fields with information.

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Connections to research consortia and ALS networks.

• —Part of a consortia
• —International reach
• —Publishes research
• —Maintains an ALS database
• —Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

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Contact

Mission

Hungary's national ALS genomic research flagship — Institute of Genomic Medicine and Rare Disorders; HUN-REN Multiomics Neurodegeneration Research Group. 250+ year medical education history (founded 1769; named after Ignác Semmelweis) Largest and most prestigious Faculty of Medicine in Hungary — 13,000 students EAN Congress 2023 hosted in Budapest — Hungarian Neurological Society cooperation Signature Hungarian SPG7 / ALS risk factor study: Jimoh M, Boczan J, Klivenyi P, Molnar MJ et al. Expanding the Phenotypic Spectrum of SPG7 Rare Damaging Variants: Insights From a Hungarian Cohort (Clinical Genetics 2025) — analyzed 58 Hungarian cases including 5 patients carrying a genetic risk factor for ALS