JaCALS — Japanese Consortium for Amyotrophic Lateral Sclerosis Research

Number of service categories this organization offers.

• ✓1 service category listed

How broadly this organization advocates and informs the ALS community.

• —Raises ALS awareness
• —Online information source
• —Publishes research / reports
• —International reach
• —Engages in policy / advocacy

How easy it is for patients and families to reach this organization.

• ✓Has website
• ✓Has phone number
• ✓Has email
• ✓Has street address
• ✓Has map coordinates

Breadth of direct support offered to patients and families.

• —In-person support groups
• —Online support groups
• —Caregiver resources in services
• —Funds or provides home care
• —Children's resources

Percentage of profile fields with information.

• ✓Name
• ✓Type
• ✓Country
• ✓State / region
• ✓Address
• ✓Phone
• ✓Email
• ✓Website
• ✓Mission

Connections to research consortia and ALS networks.

• —Part of a consortia
• —International reach
• —Publishes research
• —Maintains an ALS database
• ✓Mentions a known network (NEALS, ENCALS, TRICALS, etc.)

Contact

Mission

Japan's national ALS research consortium — equivalent of NEALS (US) + MND-NET (Germany) + FILSLAN (France). National multicenter Japanese ALS cohort — basis for all major Japanese ALS epidemiological and genetic studies Landmark publications include: Nakamura R et al. GWAS on sporadic ALS survival with iPSC-derived motor neuron verification (J Neurol Neurosurg Psychiatry 2023) — foundational Japanese ALS genetics paper Aizawa H et al. Perampanel randomized Phase 2 study for sporadic ALS (J Neurol 2022) — landmark Japanese repurposing trial Watanabe Y et al. Cognitive/behavioral status in Japanese ALS multicenter study (J Neurol 2020) — via the ALS-FTD-Q-J research group